RBD Redux and Double Helix Water

24 03 2011

My wife just pointed out that I really should be keeping a journal of my episodes and experience with RBD. She’s right, of course, as usual.

I was diagnosed with RBD a couple of years ago after a night at the sleep clinic, and was put on Clonazapam. It seems like that is what doctors do … look up a disease or syndrome, find the latest recommended medication, and put you right on it. Since then, not one doctor has asked me about it … they just keep refilling the prescription and send me home. No tests, no research, no nothing.

The results of this treatment have been unremarkable. I still have episodes, and they became sufficiently unpredictable that I finally had to move to sleeping on a futon on the floor so that I don’t strike anybody, and don’t injure myself. I almost broke my foot one night when I slept too near the foot of the bed and gave the leg of the bed a good swift kick, so had to move myself to where there is nothing I can kick or hit accidentally … for those who don’t know, RBD, or REM Behavior Disorder, means that I act out my dreams physically, sometimes including talking and yelling in the middle of the night. I’m never aware of these episodes, but they can be disconcerting to anyone who is trying to sleep nearby.

Notable episodes are few and far between, but they do happen … and surely there is a trigger. Something I ate, something I did … maybe post traumatic stress (I was a medic in Vietnam oh so many years ago), maybe stress. Maybe, according to the literature, lesions in the brain stem. Maybe maybe maybe, yet … RBD is listed as the most uncommon of a variety of parasomnia conditions, so nobody seems to be doing a lot of research on it.

So I started doing my own.

Two weeks ago, while attending a conference at sea, I encountered Dr. Shui Yin Lo, who I’d met a couple of years earlier just before my initial diagnosis. Dr. Lo is a qigong practitioner who is doing experiments with what he calls double-helix water. In Chinese medicine, optimum health entails maintaining a dynamic balance between the yin and yang meridians in the body. Nobody has ever been able to actually identify what qi is, even though acupuncturists have demonstrated the effectiveness of stimulating or blocking qi, and they have been doing it for as much as three thousand years. Dr. Lo theorizes that qi and meridians are related to the flow of water through the body. So I’m doing my own experiments, as part of a broader study that Dr. Lo is doing on the general efficacy of double helix water. To do so, I’m also cutting down on the clonazepam, and will soon be back to ground zero, with no medications.

The night before I started drinking double helix water twice a day (morning and before bedtime), I had an episode of RBD behavior. I smashed my fist into the bulkhead beside my bed on the ship where the conference was being held. No injury, but I did wake myself up. Then I started drinking the water, and twice had infrared scans before and after drinking 6 ounces of the water.  There were marked changes in the before and after pictures, enough to convince me to continue with the experiment.

I’ve been down to half a mg of clonazepam for a week now, and last night, for the first time (according to my wife) yelled in my sleep. I do remember dreaming and half waking to realize that my arms were waving around, but it was a gentle, unremarkable dream. Soon, I’ll try sleeping without the clonazepam, and will continue drinking the double helix water and doing qigong exercises.

If I can balance my own qi and stop the RBD activities, maybe I can end the maybe maybe maybe. Maybe there are ways to heal the syndrome rather than just accepting living with it.


20 12 2008

An audience of dandelion-blowing kids gathers around to see what is so curious. They have spent part of the summer morning chasing through a field playing tag, sending dandelion umbrellas floating into the sky with a single breath, collecting ladybugs, tentatively tasting a wild berry that was not yet ripe … but now, they gathered around a new curiousity.

Stooped in the middle of the group, on center stage as it were — although the setting is in a meadow — a young girl no more than seven years old reaches out to touch the leaves of the plant she just discovered.

“Watch,” she said.

As her finger neared the leaf, the leaf quickly closed itself by folding the edges into the middle.

The other kids in the group abandoned their dandelions to look for more of the same kind of plant. Their attention did not move on to other magical bits of the day until everyone had their fill of the mysterious leaves that seemed to shrink shyly away from human contact. It was a sensitivity plant, or sensitive plant, they soon learned.

That moment had many echoes throughout the years. There was an echo when walking through a thick patch of ice plant … the polar opposite of the sensitivity plant. That was on the seashore, where the sea anenome makes a very similar gesture to the sensitivity plant as it captures food carried on the tide, closing itself upon its unsuspecting prey — as well as closing at the touch of a child’s finger. There was a strong echo of the sensitivity plant when picking a basketful of fiddle-head ferns for a salad. They had to be picked at the right season, and the right time of day, before they opened their leaves for the day. And there is a faint echo of the sensitivity plant every year as the seasons change and different facets of the natural world go into dormancy, pulling back to a protective stance.

Years later, the thread that started that day in the meadow would be revived for one of the students when he learned in a botany class that the mimosa pudica was a carnivorous plant, and when the leaves closed, the plant was hoping to enfold an insect small enough to ingest for a bit of nutrition. A magical moment of childhood resolved by finding a scientific explanation. The moment from childhood was no less magical, but the universe was one step closer to having a comfortable explanation.

Discovery seems to satisfy a deep urge in people. Something as simple as the sensitivity plant may already be known to millions of other people, but the moment when one particular child reaches out a finger for the first time and sees the plant respond to them … that is always magical, no matter when and no matter where it takes place.

That sense of wonder, that awe, is repeated in a kaleidoscope of different situations for children who are just discovering the universe on their own. The magic eventually evolves into a structured way of looking at the universe, a way of explaining away the parts that are not yet understood, or that have not yet been discovered. The world view evolves into a familiar structure, but that does not mean that there are no more surprises, no more discoveries to be made.

It just means that the way one’s mind understands the universe is sufficient at the moment. There are no overwhelming mysteries, no anomalies so obvious that they cannot be ignored.

That is not to say that there are no anomalies. It’s just that the mind has a way of ignoring what it doesn’t understand … ignoring the unknown until it is impossible to deny its existence. The proverbial “elephant in the room” that may be obvious to most people, but is invisible to anyone whose view of the universe has not yet discovered a rational explanation for elephants.

What am I all about?

11 04 2008

Okay, what can you expect when you tune into my blog? I can list about three or four topics that you are likely to hear about. And of course with any one of those topics, I may drill down through several eon of information until I reach some precambrian layer. What are the passions?

  • Health. People ought to take more control of their own health, rather than leaving it to the medical establishment.
  • Consciousness. Ever heard of “noetic” sciences? That covers just about anything in the realm of mind and spirit, including how we know the things we know, and what it means to truly recognize that we are all connected at a deep root level.
  • Environment and Sustainability. I put those two together because there is such overlap. Expect to hear a lot about those two topics. In fact, the overlap goes into all of the topics I’ve already mentioned. The environment is closely tied into people’s health, and when someone recognizes their shared interests and shared commonalities, it is in their self-interest to protect not just their own being, but those of all creatures (and non-creatures) great and small.
  • Writing. I’m a published poet. A published technical writer. A published writer in general. Of course I extend that interest to all of the arts, including classical music and opera. Just don’t look in here if you want to read something about American Idol or Dancing with the Stars. I prefer enduring art.

So anyway, just wanted to say hello to break the ice. More later.